General conditions
This is a beta version of MyAfib. The Privacy Policy will be updated periodically before the official launch, and the latest version will always be available here.
This Privacy Policy explains how we handle your personal data during the beta phase of MyAfib, in line with the European General Data Protection Regulation (GDPR).
1. About MyAfib
MyAfib is a research-driven platform currently in beta testing. The aim of MyAfib is to help people living with atrial fibrillation (Afib) track their experiences and contribute to scientific research.
2. What personal data do we collect?
Personal data means any information relating to an identified or identifiable natural person.
During the beta testing phase, we may collect the following personal data:
- Contact data you provide to set up your account (e.g., email, name). You can share as much or as little information about yourself as you choose.
- Self-reported health & lifestyle data you choose to log and share for research purposes (e.g., symptoms, triggers, lifestyle habits).
- Testimonials and feedback you provide to improve the platform.
We do not collect or share sensitive health data beyond what you explicitly choose to enter.
3. How do we use your data?
You decide how your data will be used. When signing up, you can choose:
- Personal use only
- Your data is only visible in your private dashboard.
- Your data is not shared with researchers or third parties.
- Contribution to research
- Your data is anonymized and aggregated before being included in research datasets.
- These anonymized datasets may be shared with research organizations, hospitals, universities, and companies.
- We may charge a fee to these organizations to sustain our mission.
- Your identity will never be disclosed, and your personal information will never be sold.
You can change your choice at any time in your profile settings or by contacting us.
4. Transparency and ethical use
Our goal is not to restrict access to data, but to responsibly make it available for scientific discovery. Transparency, user control, and the ethical use of data are at the core of everything we do.
5. Data security
We take appropriate technical and organizational measures to protect your data against unauthorized access, loss, or misuse.
6. Data storage and deletion
Your personal data will be stored securely within the European Union. You may request deletion of your data at any time by contacting us at info@afiponline.org
7. Cookies and analytics
Our website uses:
- Necessary cookies — essential for platform functionality
- Analytical cookies — to understand usage and improve the service (activated only with your consent)
Cookies are used to improve functionality and analyze usage. Functional cookies (e.g., login sessions) are essential. Anonymized analytics cookies help us understand site usage. Consent is valid for 13 months. We do not use tracking for advertising or third-party marketing.
8. Your rights under GDPR
You have the right to:
- Access your data at any time.
- Request correction or deletion of the data that you enter on the site.
- Limit or object to processing of your personal data
- Withdraw your consent at any time. If you withdraw consent for research use, your future data will no longer be shared.
9. Contact
If you have any questions about this Privacy Policy or how your data is handled, please contact us at info@afiponline.org