FAQ

Yes, you can use MyAfib without contributing to research. In the future, you’ll be able to use MyAfib to track your symptoms, triggers, treatments and habits and compare your experiences with others in the community without sharing the data with our researchers.

At MyAfib, we believe in:

The power of lived experience

Real-life experience is essential to understanding Afib and improving care.

Empowerment through community and collaboration

We’re stronger together. We’re building a supportive and well-informed community by connecting people with lived experience of Afib with researchers and caregivers.

Personalization instead of ‘one-size-fits-all’

Everyone is different. We believe in personalized Afib management and overall care that is tailored to your unique needs.

Trust & transparency

You are in control. You decide what you share, when you share, and with whom you share your experiences.

Equal access to knowledge

We think that everyone deserves to truly understand their health. That’s why MyAfib is free, inclusive and designed to be easy to use. As a MyAfib member, you always have access to the latest Afib research and insights.

Our research team aims to stop Afib by using a holistic approach. At the heart of this approach is co-creation with people living with Afib to create scientific breakthroughs, such as uncovering the underlying mechanisms driving Afib, and societal breakthroughs in personalized therapy and diagnostic development.

Through citizen science – collaborating closely with people that have lived experience of Afib – we have already identified five major triggers for Afib. Together with people with lived experience of Afib, researchers, and health professionals, our research team aims to further explore these triggers.

Moreover, our experimental research aims to build the molecular human Afib atlas, a detailed map of the biological processes involved in Afib. This atlas serves as a foundation for new treatment discovery and biomarker research. Through co-creation with patients, we can test these new treatments in clinical trials that reflect the realities of daily life with Afib.

MyAfib is for anyone living with atrial fibrillation, whether you’ve just been diagnosed or have been managing this condition for years. It’s also for caregivers, loved ones and healthcare providers who want a better understanding of the lived experience of Afib and support those affected.

Everyone is welcome to share, connect and learn.

Because it will improve your life and our understanding of nuances in treatment effectiveness, underlying causes, mechanisms and triggers that can vary per person. Therefore, your insights are crucial.

MyAfib was created to bridge a gap in Afib management. Traditional treatments don’t work the same for everyone. The daily, lived experience of people living with this condition is often overlooked in conventional research about Afib, which mostly takes a ‘one-size-fits-all’ approach.

MyAfib takes a holistic and personalized approach to Afib care.

How do we do that?

• By providing clear, evidence-based information to help people better understand Afib. As a MyAfib member, you always have access to the latest Afib research and insights.
• By offering a personal dashboard that helps users track their symptoms, identify triggers, and monitor progress over time.
• By making it easy to share personal health data with cardiologists and other healthcare providers. We want to improve communication and help support more informed treatment decisions.
• By inviting individuals to participate in research, because we believe that your experiences can help shape the future of Afib management. At MyAfib, we empower you to use your own health journey as a valuable source of insight — not just for you, but for the entire Afib community.